A crowdfunding page to help two severely epileptic boys has been reinstated after it was wrongly suspended over reports it was being used to fund illegal drugs. The page was created by Parents of Hope campaigners Lisa Quarrell and Karen Gray to help them source a LEGAL cannabis cure for their sons. But after complaints to GoFundMe from uninformed sticky beaks that the page was being used for illegal drugs, it was shut down for two weeks. Thankfully the page was reactivated last night after the News got in touch with the site provider. A GoFundMe spokesman said: "The campaign is live and accepting donations." East Kilbride mum Lisa has been fighting long and hard for access to whole plant medical cannabis to treat her six-year-old son Cole Thomson’s drug resistant focal epilepsy. The Newlandsmuir boy was admitted to hospital indefinitely following a dramatic deterioration in his health after using the prescribed CBD oil Epidiolex. His family are in desperate need of donations to … [Read more...] about Campaigning mums’ fundraising page to pay for medical cannabis cure shut down
Around 25,000 children with epilepsy are being denied medical cannabis to stop Campaigners say that not a single child has been prescribed the drug on the NHS since the reform triggered by the case of Alfie Dingley, seven. He had up to 500 life-threatening seizures a month before he began treatment with cannabis oil. His mother, Hannah Deacon, said: “We believe his NHS prescription is still the only one The End Our Pain Campaign, comprised of families of children deprived the drug, will go to Parliament tomorrow to protest as MPs quiz chief medical officer Dame Sally Davies on the issue. Hannah said: “Families were given hope. Now they are in despair. Their children are suffering horrendously and medical cannabis could help them, like it has helped Alfie.” He was the first child to receive medicinal cannabis under a unique application before the law changed on November 1. Epilepsy Action data estimates there are now 25,398 children suffering … [Read more...] about Kids forced to leave the UK to survive as 25,000 still denied cannabis ‘cure’
This is Cole Thomson at football practice. Shortly after this video was taken Cole took a seizure on the pitch. The six-year-old's distraught mother has this week made a heart-wrenching plea for a life-saving cannabis cure so her boy can have a fighting chance of a seizure-free Christmas. With time running out to source the potentially miraculous drug Cole so desperately needs to cure his paralysing stroke-like seizures, mum Lisa Quarrell has bravely spoken out about her recurring nightmare – and laid bare the devastating impact these traumatic episodes are having on the Newlandsmuir lad’s health. The East Kilbride News has told how the single mum-of-two is battling for access to medical cannabis to save her severely epileptic son’s life. Lisa, 37, has pleaded with policy-makers, begged for backing from politicians while raising thousands of pounds for other desperate families – and she launched the UK-wide Parents of Hope campaign to push for the reform of … [Read more...] about Desperate mum fighting for life-saving cannabis cure reveals daily heartbreak
DOCTORS are now able to prescribe cannabis oil to patients in a long-awaited change to regulations. The legal low-concentrate CBD oil is said to be beneficial for treating a number of complaints as well as promoting sleep, boosting appetite and reducing anxiety, stress and depression. What is cannabis oil and is it legal in the UK? CBD cannabis oil is a substance extracted from the cannabis plant by steam distillation. Cannabis oil is usually consumed orally, and has a very distinct taste. This low-concentrate version of the oil is available to buy in the UK and is not illegal. Products are required to contain less than 0.05% THC. THC (or Tetrahydrocannabinol) is the psychoactive component in cannabis that makes users feel "high". There have been high profile calls for higher concentration oil to be made legal. The family of epilepsy sufferer Billy Caldwell, 12, were granted an exemption by the Home Secretary Sajid Javid to take concentrated CBD cannabis oil after insisting it … [Read more...] about What is cannabis oil, what is CBD used for, is it legal in the UK and is it available on prescription?
Grinning from ear to ear with his endearing gappy smile as Santa hands him a present, Alfie Dingley is thrilled to bits. Like most children, the seven-year-old has been looking forward to meeting Father Christmas. But, unlike most youngsters his age, Alfie has only just understood who Santa is. So, for the first time since he was born with a rare form of epilepsy – and thanks to a landmark drugs ruling – his family can at last celebrate the festive season properly. Alfie has a disorder called PCDH19. There are only nine known cases among boys world wide. It causes clusters of life-threatening seizures – up to 150 a month in Alfie’s case – in addition to learning difficulties, compulsive disorders and autism. The only thing which gave the family any respite from the relentless night terrors, ambulance call outs and uncontrollable violent outbursts, as well as the seizures, was cannabis oil. To access it they had to … [Read more...] about ‘Cannabis oil means our boy knows who Santa is for the first time ever’