A brave Immingham toddler is one of the youngest in the country to undergo pioneering treatment for a rare cancer.
Jaxon Conway will travel to Germany ahead of treatment for cancerous tumour in his cheek.
The 16-month old, born to Carrie and Kyle Conway on Mother’s Day last year, will travel to Essen in Germany on Wednesday for MRI and CT scans ahead of proton radiation treatment.
Only 60 children a year are diagnosed with the rare Rhabdomyosarcoma.
The proton treatment has only just started on the NHS in this country and there are already many children undergoing the specialist treatment here.
So Carrie and Kyle have opted to go to Germany.
They spotted a lump on his cheek just before Christmas and tests carried out in February revealed the rare cancer.
Carrie said: “He is a very brave boy. You would not know he is poorly. He takes it all in his stride which is what keeps us going.”
She added: “It was lucky that it was visible on his face because often the tumours can go undetected on the brain, lungs and bones. It is a rare cancer. There are other babies with it but Jaxon is one of the youngest.”
She said the support the family has had had been been “amazing.”
She thanked her friend Danielle East who held a charity Clubbersize exercise session at Immingham Civic Centre and raised £1,000.
Jaxon’s family have been overwhelmed by charity fund raising to help the young couple make ends meet while the toddler undergoes treatment abroad to kill the tumour cells.
It could take up to six weeks, so friends, family and workmates at Kyle’s firm Brand Energy have rallied round to help the family pay bills.
What is proton beam therapy?
- The therapy uses high-energy protons, which directly target the tumour and also cause little damage to nearby tissue – unlike the X-rays used in traditional radiotherapy
- It is a boost for youngsters especially, who can otherwise be at risk of long-term effects
- Patients are sedated for each session as moving even a fraction during the therapy could have dangerous results
- It is highly effective treatment for wide range of localised tumors in head and neck area, lung, prostate, bladder, spinal cord, gastro malignancies, and ocular tumors, among others
- It can take from five days for certain conditions or up to eight weeks depending on tumor sites
- It is highly-preferred radiation treatment option for paediatric cases. Children are susceptible to injury from standard x-ray radiation because their tissues and organs are growing rapidly
A charity football match held at Lucarlys in on Wilton Road Humberston on Saturday involved teams from Brand Energy who all wanted to help support Kyle while he has to take time off work.
Joint organisers of the football match and fun day, Ryan Rice said: “We all wanted to do as much as we could to help them cover bills while he is off work.
Kyle, 32, said: “The support we have had from everybody has been unbelievable.”
He added: “Jaxon loves playing in a sandpit and watching In the Night Garden with Iggle Piggle and Upsy Daisy and friends and he enjoys going for walks at Cleethorpes beach.”
He thanks staff at Sheffield Children’s Hospital where Jaxon has also been treated.
An estimated £6,400 was raised at the Lucarlys fun day, including a donation of £2,000 from Brand Energy management team.
A cake stall at the Lucarlys fun day, courtesy of Karen Barber, Elizabeth McCallion and Chloe Barber raised £213.
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